Winter workhorse + Health update
- Thread starter N4LLY
- Start date
ekimj10 said:ekimj10, Morning "Young man"
We are family :wink:
Cheers Sean, that is a very heart warming message and absolutely true and genuine.
I just felt a little guilty taking some of the support from your post. Without doubt a unique bunch of people contribute to this Forum.
Absolutely no worries, no need for guilt
Please share and update if you choose 
[ref]1536Z4[/ref], They did recommend E45, which i only know for babies bum's
They said use your regular products if non perfumed. Me, N4LLY, moiusturise ?? !!
:lol: Just ordered a new undercounter fridge/freezer, to be a bit more organised with diet, food stuffs, medication's etc.
AO called and offered me extended warrenty / insurance
:lol: :lol: I explained to them why i thought that would not be neccessary / applicable :lol: 
Do you fellas have to make your own way to and from your chemo / radio therapy?
There is a charity up here in the NE that provides transport for patients (Daft as a Brush) and I wondered if anything similar existed in your areas.
Taking out just one element would help.
My recent hospital trips were given by a neighbour.
I’ve since been able to repay his kindness by doing the same for another neighbour In the cul de sac
Ps I’ve now renamed our end as Codgers Corner!
There is a charity up here in the NE that provides transport for patients (Daft as a Brush) and I wondered if anything similar existed in your areas.
Taking out just one element would help.
My recent hospital trips were given by a neighbour.
I’ve since been able to repay his kindness by doing the same for another neighbour In the cul de sac
Ps I’ve now renamed our end as Codgers Corner!
ronk said:
South east Kent and personal experience.
Hospital transport is available, Taxi's etc. However, all the nurses have told me not to bother, i will be waiting for
like 4 hours to get picked up. The service is shocking and embarassing apparently.
For Chemo i managed to drive myself to and from. That is the adminstration of Chemo drugs appointment's.
Any scan's or treatment inbetween i would not attempt to drive, same for shopping for supplies i drive and collect
enough to get me passed scheduled appointments etc.
The ex Mrs takes me to these. Also the important meetings with Doctor's and consultant's, she come's along
as suffering from Chemo fog i either do not hear what's being said or forget within 2 minutes
The guy's & girl's at work keep telling me they will drive me, same as friends and neighbours. Even 90 + plus year old Brenda (Bless)
want's to do my shopping, she has a Taxi twice a week booked to go to the supermarket
I might tag along a couple of times and carry bag's for her For Radiotherapy. A bit more involved, i thought, being that it's every day Mon to Fri.
However, nurses tell me i may be able to drive myself for the first 2 weeks as the side effect's are much in delay and kick in
much later. We will see. :roll:
The Ex again will do all the rest. Her work has agreed she can work flexible hours to accomidate. As the treatment's are only about 20-30 mins each
we think this should be workable.
Ooopps rambling, laters 8)
I’m pleased to hear that you seem to be well supported
The big supermarkets did our deliveries during my illness period a now we just do a click n collect from Tesco which helps us.
The Daft as a Brush service for C patients was started a chap who sold a successful business and he ploughed the entire proceeds of the sale into the charity
(I gather it was much to his family’s displeasure)
The service is far removed from the hospital transport service!
The big supermarkets did our deliveries during my illness period a now we just do a click n collect from Tesco which helps us.
The Daft as a Brush service for C patients was started a chap who sold a successful business and he ploughed the entire proceeds of the sale into the charity
(I gather it was much to his family’s displeasure)
The service is far removed from the hospital transport service!
North West Surrey
N4LLY said:
Sadly that seems to be the norm in most places.
My Mum was having daily radiotherapy at the Royal Marsden and being in her 80s she couldn't cope with driving even though she only lived 5 or 6 miles away. So she used the hospital transport and often ended up getting there hours before her appointment, and sitting around for hours afterwards waiting to be taken home.
I was still working at the time and although I offered she was too independent too accept. :roll:
It's good to know someone is helping you out.
Nanu said:
Oi !! She is my best friend
:wink: Has been for 40 years, we can just no longer live togeather Perfect arrangement for both of us.
[ref]Mr Tidy[/ref], Yeah have noticed in the Oncology waiting room, i have come out of the ward after 3 hours treatment
and some of the same faces are still sitting there. :? ??
N4LLY said:
That's the same arrangement Mrs Tidy and I have apart from the 40 years bit as we only met in 2000. We get along fine for a few days at a time!
I think that's the problem with hospital transport services, they have do all the collections or drop-offs for certain areas in one trip as there aren't enough resources to go around.
1536Z4 said:
Hi Tony,
All good here, under the circumstances.
Yummy tube op' went well wednesday. Had a overnight for observation. Woke up in the early hours, 1 am i think, with
incredible stomach pain. A kind nurse put me on a morphine drip, which was nice, slept through to 8am on a very noisy ward
Back home and surprisigly slep a good 6 hours last night. Stomach area in very uncomfortable and painful on occasion's, but not to
bad. Only doing tube flush's at the moment as still eating as normal. (Soft diet).
X3 still proving bomb proof. Will be used every day next week as using it to drive to and from Radiotherapy from Monday.
Z3 not geting a lookin as cannot get in or out of it
Want to now get first week of Radio' out the way, to see how body copes / reacts. 8)
Laters
N4LLY said:
Is that due to the stomach tube or just due to the related pain of the op . Must have been very thankful for that morphine drip for the pain and noisy wards are the worst so a result really
. Well that`s another hurdle overcome . Keep us informed on how it`s going because the news on TV is so depressing 1536Z4 said:N4LLY said:
Is that due to the stomach tube or just due to the related pain of the op .
Both really, do not want to risk a "BURST" when wound is so young :lol:
Must have been very thankful for that morphine drip for the pain and noisy wards are the worst so a result really
Indeded. They only had space for me in the "Neurology" ward :?
[
Nally wrote
b][/b]Want to now get first week of Radio' out the way, to see how body copes / reacts. 8)
All best Sean, I found it it OK, 12 sessions over 3 weeks and it was only towards the end that it became a bit more problematic.
I did suffer from radiation burn and was given some free samples o QV Skin Lotion and it is brilliant, only costs around £10.00 for 100ML from Amazon. Helps with any skin irritation even the effect of morphine which I take daily.
I seems to have cured an area on my rib but there's been a recurrence on the lung on the opposite side.
Just waiting for my appointment call.
C'est la vie as Del Boy would say.
Nally wrote
b][/b]Want to now get first week of Radio' out the way, to see how body copes / reacts. 8)
All best Sean, I found it it OK, 12 sessions over 3 weeks and it was only towards the end that it became a bit more problematic.
I did suffer from radiation burn and was given some free samples o QV Skin Lotion and it is brilliant, only costs around £10.00 for 100ML from Amazon. Helps with any skin irritation even the effect of morphine which I take daily.
I seems to have cured an area on my rib but there's been a recurrence on the lung on the opposite side.
Just waiting for my appointment call.
C'est la vie as Del Boy would say.
Update: X3 running sweet as a nut
Health: Look away now
Last week turned into a nightmare.
Radiotheraphy started last Monday, first session was easy enogh, Tuesday also no issue.
Wednesday; Something not right ? Face mask ultra tight and restricting breathing. Was an uncomfortable session :?
Made comments to nurses and took pictures.
Impression left by mask, taken some 10 - 15 mins after mask removal.
Thursday; Session was unbearable. Emense pain and suffocated. Had to swallow 200 + times to try to keep
airway open. Nearly threw in the towel but realised 4 tunes had been played on the radio so knew was about to end.
It took me some time to recover, laying on the slab, i explained to nurses what i just experienced.
Friday morning: Look away now
To gross to post here.
Forwarded pictures to cancer care team. Then called about 0900 Hrs Friday morning.
My pictures were circulated to all concerened. Call bacl told me not to attend Friday's rediotheraphy.
Another call asked me to attend an emergency meeting first thing Monday morning with
Cancer Commander in cheif.
Monday;
Cheif doctor tells me he was reviewing latest scan images at the same time as he got news of my
phone calls and issues. Matched what he was looking at.
Cancer had massively flared up and radiotheraphy would have no longer have any possitive effect against it.
Treatment therefore, changed from curative to Palliative
Was given 2 choises: 1. Do nothing
2. Return to Chemotheraphy and Palliative care.
Left the building for 30 mins to sit in the sunshine with the ex Mrs.
Selected option "2"
All Radiotherapy immediatley cancelled. Now waiting for a new chemo schedule.
It will be once a week for 3 weeks then with a week off and repeat. How long for? no one knows.
(Radio' may be possible in the far future but highly unlikely)
The Chemo i will receive, i am promised will be the "Lite" version, with no chemo pump involved, Result
Even my GP called 1800 Hrs yesterday to let me know his team are available for me at any time also. Also, issued a "Not fit for work note"
extended to June. I even received in an email 10 minutes later. Blimey !
Oh well back to square one, see how it pan's out.
Health: Look away now
Last week turned into a nightmare.
Radiotheraphy started last Monday, first session was easy enogh, Tuesday also no issue.
Wednesday; Something not right ? Face mask ultra tight and restricting breathing. Was an uncomfortable session :?
Made comments to nurses and took pictures.
Impression left by mask, taken some 10 - 15 mins after mask removal.
Thursday; Session was unbearable. Emense pain and suffocated. Had to swallow 200 + times to try to keep
airway open. Nearly threw in the towel but realised 4 tunes had been played on the radio so knew was about to end.
It took me some time to recover, laying on the slab, i explained to nurses what i just experienced.
Friday morning: Look away now
To gross to post here.
Forwarded pictures to cancer care team. Then called about 0900 Hrs Friday morning.
My pictures were circulated to all concerened. Call bacl told me not to attend Friday's rediotheraphy.
Another call asked me to attend an emergency meeting first thing Monday morning with
Cancer Commander in cheif.
Monday;
Cheif doctor tells me he was reviewing latest scan images at the same time as he got news of my
phone calls and issues. Matched what he was looking at.
Cancer had massively flared up and radiotheraphy would have no longer have any possitive effect against it.
Treatment therefore, changed from curative to Palliative
Was given 2 choises: 1. Do nothing
2. Return to Chemotheraphy and Palliative care.
Left the building for 30 mins to sit in the sunshine with the ex Mrs.
Selected option "2"
All Radiotherapy immediatley cancelled. Now waiting for a new chemo schedule.
It will be once a week for 3 weeks then with a week off and repeat. How long for? no one knows.
(Radio' may be possible in the far future but highly unlikely)
The Chemo i will receive, i am promised will be the "Lite" version, with no chemo pump involved, Result
Even my GP called 1800 Hrs yesterday to let me know his team are available for me at any time also. Also, issued a "Not fit for work note"
extended to June. I even received in an email 10 minutes later. Blimey !
Oh well back to square one, see how it pan's out.