Winter workhorse + Health update

N4LLY · Post by **N4LLY** » Thu Jan 04, 2024 7:57 pm

Hi Tony,

My route to diagnosis has not been typical so rather not divulge here, as may cause distress or anger

The typical would be a smal lump in the neck under the jaw. Followed by difficulty swallowing, a change in voice, head and ear aches.

Rhod Gilbert's recent program explain's it well. His was caused by HPV, a virus, mine was not and different so again not typical.

https://www.channel4.com/programmes/rho ... k-for-su2c

Have PM'd you my phone number, more than welcome to call for my experience so far

Mr Tidy · Post by **Mr Tidy** » Thu Jan 04, 2024 8:51 pm

N4LLY wrote: ↑Thu Jan 04, 2024 4:51 pm Hospital visit this morning.
Good news: Dr. Very happy, seems i have responded extremly well to round 1 of Theraphy
Bad news: Dr. not going to tone down the doseage for round 2. So another full on wallop of meds next week

That's mixed news then - I hope Round 2 goes well for you.

I don't really know how many miles it takes for a DPF Regen as the only car I've had with a DPF was doing 14,000 miles a year with plenty of 100+ mile trips on Motorways! But hopefully 30 mile round trips will do the trick!

1536Z4 · Post by **1536Z4** » Thu Jan 04, 2024 10:11 pm

N4LLY wrote: ↑Thu Jan 04, 2024 7:57 pm Have PM'd you my phone number, more than welcome to call for my experience so far

pvr · Post by **pvr** » Thu Jan 04, 2024 10:42 pm

N4LLY wrote: ↑Thu Jan 04, 2024 7:57 pm Hi Tony,

My route to diagnosis has not been typical so rather not divulge here, as may cause distress or anger

The typical would be a smal lump in the neck under the jaw. Followed by difficulty swallowing, a change in voice, head and ear aches.

Rhod Gilbert's recent program explain's it well. His was caused by HPV, a virus, mine was not and different so again not typical.

https://www.channel4.com/programmes/rho ... k-for-su2c

Have PM'd you my phone number, more than welcome to call for my experience so far

I had watched the program when it was on, I almost hoped you had not seen it as the treatment was so severe. His humor made the program watchable but the message and his journey was very sobering.

All I can say again is all the best with this and hopefully the treatment is bearable.

N4LLY · Post by **N4LLY** » Fri Jan 05, 2024 2:57 am

Morning pvr,

I did avoid watching until i was a week or so into Chemo, as i wanted to compare notes.
I found Rhod's use of the word "Brutal" to be fair

(Have alway liked the guy)

I have completly avoided Google

Forgot to mention, lfull head of hair fell out last weekend, that was quick

(many will know, i am not vain so no issue there

)
Had a shave on Monday, it's now Friday and no stubble has grown back. Wierd.

N4LLY · Post by **N4LLY** » Mon Jan 15, 2024 2:24 pm

Health:
Round 2 started Friday. 3 hours to get drugged up. Then fitted with the Chemo pump again

Took Nintendo switch to pass the time.
Pain, Nausea, zero energy again. Oh well

: 20240112_163815.jpg (110.41 KiB) Viewed 349 times

X3:
Put 100 miles on it last week, so not to bad.

Rear parking sensor's going nut's though. One has lost paint / covering ?
Quick google show's new sensor to stickers ?

I have the right touch up paint, BMW A08 Silbergrau. Would a clean and paint be a fix ?
Or should i pull a fuse and use the tow bar ?

: 20240115_090658.jpg (207.29 KiB) Viewed 349 times

Cheers

pvr · Post by **pvr** » Mon Jan 15, 2024 2:32 pm

Good luck with the current round

With the X3 - water ingress is a sure way to make them go nuts, a hairdryer could revive that. Simple to pull out and replace for a cheap eBay unit if need be though.

Thought the tow bar was for protection against others

N4LLY · Post by **N4LLY** » Mon Jan 15, 2024 2:52 pm

pvr wrote: ↑Mon Jan 15, 2024 2:32 pm Good luck with the current round

Thanks Paul,

You can see how happy i was fitted with the pump again, was not expecting that.
Damn i look ill / crap, lost alot of weight.
BTW the chin was after a shave about 10 days ago, no stubble growth at all

(Apolagise in advance if i spam the forum, am drugged up and bored

)

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1536Z4 · Post by **1536Z4** » Mon Jan 15, 2024 6:00 pm

N4LLY wrote: ↑Mon Jan 15, 2024 2:52 pm You can see how happy i was fitted with the pump again

Look on the bright side you may get mistaken for Victor Meldrew

1536Z4 · Post by **1536Z4** » Sun Jan 21, 2024 9:19 pm

Hope you are over the worst of the side effects of your latest Chemo . How are the windows holding up in this latest storm ?

Neil CR · Post by **Neil CR** » Sun Jan 21, 2024 10:02 pm

Wishing you well

Pondrew · Post by **Pondrew** » Sun Jan 21, 2024 11:07 pm

Got to say...your attitude is admirable, Sean.
In our thoughts.
You need to get back on your feet quickly, the 'caretaking' of your block is not going to do itself!

N4LLY · Post by **N4LLY** » Mon Jan 22, 2024 7:24 am

Thanks for your thoughts guy's, is really appreciated

Chemo pump came out Wednesday evening, Yay

Last of the self injections applied yesterday, so need to flush that crap out ASAP.

So still a bit Tom Dick, the ex (seperated 10 years) kindly giving me a lift for today's appointment.
Seeing a consultant about taking my teeth out in preparation for Radiotherapy and the reconstruction process.
Still not googeling anything so have no idea what that all entails, apart from the obvious

(Wonder if i can order a set of "Jurgen Klopp's"

)
Will just keep doing what the proffesionals tell me.

Simples i think.

1536Z4, Doors not blown in. Was very, very noisy last night. I managed 6 hours sleep which was a blessing.

Cars not being driven, expect to be fit Thursday so planning trips out then.

Round 3 is 1st Feb, that seems to be coming around fast

Still on the planet, so all good

Pondrew, Been checking up on the cleaners work, is spotless, so you can rest easy

1536Z4 · Post by **1536Z4** » Mon Jan 22, 2024 10:12 am

N4LLY wrote: ↑Mon Jan 22, 2024 7:24 am Still on the planet, so all good

Yes but which one ? Hope the appointment goes well . All the best

N4LLY · Post by **N4LLY** » Wed Jan 24, 2024 8:56 am

1536Z4 wrote: ↑Mon Jan 22, 2024 10:12 am
N4LLY wrote: ↑Mon Jan 22, 2024 7:24 am Still on the planet, so all good
Yes but which one ?

Haha do wonder some times.

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