Winter workhorse + Health update

[Argyll Andy]

That's pretty disgraceful , never heard of that before regarding cancer patients, so if you have a certain illness you're blacklisted with not a chance of receiving any emergency help

You could always have called your local pharmacy so long as its between 9 and 5.

Last time I tried to get a doctors appointment it was a 3 week wait.

This country is a joke.

Hope things improve for you.

Tim.

I was gob smacked ! I have never called 999 before and to be told "Computer say's no" 3 times confused the feck out of me.
It was ca. 2345 - 2359 Hrs and i could have been bleeding to death !! ??
I think my Cancer care team are taking this up internally

s**t all round Sean, glad you’re feeling a bit better today.

Tell them you think you’re having a heart attack next time, when they arrive and see the kitchen you’ll get taken in, absolutely shocking, as you say you could’ve been bleeding to death

[pvr]

Absolutely awful and at night it also always feels so much worse. NHS at its worst in those situations. I have only heard what you described with a sinus burst.

[TitanTim]

That's pretty disgraceful , never heard of that before regarding cancer patients, so if you have a certain illness you're blacklisted with not a chance of receiving any emergency help

You could always have called your local pharmacy so long as its between 9 and 5.

Last time I tried to get a doctors appointment it was a 3 week wait.

This country is a joke.

Hope things improve for you.

Tim.

I was gob smacked ! I have never called 999 before and to be told "Computer say's no" 3 times confused the feck out of me.
It was ca. 2345 - 2359 Hrs and i could have been bleeding to death !! ??
I think my Cancer care team are taking this up internally

Just doesn't seem right to me so I hope they get to the bottom of it.

When my mum fell ill, she subsequently passed away 5 days later, but I remember calling for an ambulance and I was only on the phone for literally less than 2 minutes and they were knocking on the door whilst I was still on the call, I was gobsmacked how quickly they turned up. But that was 10 years ago and I imagine alot has changed since then.

I remember the paramedics back then always said ring for an ambulance rather than the doctors, seems you can't get neither these days.

Tim.

[ronk]

I was knocked back for an ambulance to hospital when I had double pneumonia a couple of years ago.
I had collapsed on the bathroom floor but told to make my own way to A&E. Their attitude only changed when they were told that my sats were 85% The Ambulance came as a priority - one under blue lights apparently.

The Paramedics who attended were top class and very sympathetic of my condition and said my needs were very genuine.

I think it’s the controlling staff that needs to be more informed and less reliant on the tick box script!
(Oxygen sats were not on their check list)

[N4LLY]

I think it’s the controlling staff that needs to be more informed and less reliant on the tick box script!

110 % This ^^^^

[Nanu]

Horrendous lack of service from a so called emergency service. I wouldn't just leave it to your cancer team to take it up internally. Trust me nothing will come of it.

Get this publicised as it may assist you in the future but also anyone else in the same situation. Can I suggest an email to the GBNews team. They are hot on this sort of thing and there would be no need to provide personal details. Have a couple of contact details if you want them.

Shocking but glad to hear your OK

[Mr Tidy]

Wow that's appalling Sean.

Glad you are feeling a bit better now, and I hope things keep improving.

[RAYK47]

N4LLY

I am gobsmacked. What awful service but not uncommon unfortunately.

My father in law had some pains and called his GP, GP said call ambulance now, you are having a heart attack. Called 999 and was told someone would be there in about 4hrs. So he called me and I took him straight in.

[Big Bad Boris]

I feel for you brother, I have a similar prognosis to your good self, but reading your story I haven’t been through anywhere near as much sh*t as of yet. You sound similar to me in that we don’t care about the odds….we will keep fighting for as long as possible for ourselves and especially our families, it’s tough physically and mentally (I felt some tears as soon as I mentioned my family)…..but hopefully we’ll both keep fighting as long as we have a breath in our bodies

OK mushy stuff done….on to practicalities.. Someone mentioned PIP above, apologies if you now know this, but just in case, you are automatically entitled to claim and receive PIP given your prognosis.. The way to go is to get an SR1 form completed by your cancer care team, we found then liaising with MacMillan was the best route as they have people that do this all the time and know how to get through the hoops. There should be minimal waiting time with an SR1 to hand and once approved you will be paid weekly, tax free. Like me you have probably paid enough tax and N.I. to have your own hospital wing somewhere… and it seems neither of us will be around to claim our state pensions, so don’t be at all worried about taking any benefits you can at this stage, you are entitled so go for it. Also if you get the enhanced level of PIP i.e. 12 points, which you should, you can also apply for a fast tracked blue badge, which will help with parking both generally and on hospital visits.. you can also apply for a ULEZ exemption if you need it. Also once approved for PIP someone close to you can probably apply for carers allowance (as my wife does).

If I can be of any help or support to you in terms of practical financial advice as above etc (we’ve learned a lot over the last few months) or even a simpler stuff such as e-man hugs then please just drop me a line, either here or via PM. I note there are sadly quite a few others on here with similar issues and we and they realise that only when you are in this position do you truly understand what it does to you physically and mentally. I have countless people giving me love and support, it’s fantastic, but occasionally only speaking ( or swapping messages) with someone that has been through the same emotions and walked in your shoes can help.

I am in for my second round of EDP chemo starting tomorrow, due to my ”specialism” it has to be done at the Royal Free in Hampstead so I will be residential, meaning I will have a lot of time on my hands if you do need anything.

Also like me it seems you are also using humour to try and tackle this disease, I think trying to look on the funny side of it all helps keep a positive mental attitude which is important. To that end, I usually have quite a few questions for my Oncologist when I meet him, this time I shall definitely be asking if they have a “swallow nurse”

[Nanu]

You guys dealing with this horrible curse never cease to amaze.

[N4LLY]

I feel for you brother, I have a similar prognosis to your good self, but reading your story I haven’t been through anywhere near as much sh*t as of yet. You sound similar to me in that we don’t care about the odds….we will keep fighting for as long as possible for ourselves and especially our families, it’s tough physically and mentally (I felt some tears as soon as I mentioned my family)…..but hopefully we’ll both keep fighting as long as we have a breath in our bodies

Gosh ! Thanks Kevan for your post here Trully appreciated
Followed your situation from the for sale thread, so glad that went smoothly

Mentally am strong, it's the physical that keep's knocking me back. Sleep patterns are shot away with 4 - 5 per 24 hrs
I wake with what seems like a cronic hangover

Having a meeting this afternoon with my Cancer commander in cheif, so expect to get some update on how we are doing.

Have swallowed my pride and booked an appointment with the Pilgrims Hospice. Visiting them on Wednesday with an open mind.

Have a great time in the "Royal Free" and that all work's out good for you

PM'ing you my mobile number, we can be cancer buddies and skip, holding hands, through this

Thanks again, cheers.
Sean

[ekimj10]

Hi Sean,
Totally shocked by the ambulance attitude, I've had four in the last four weeks and here (South Warwickshire Financial Trust) you mention cancer and it seems you are immediately shunted up the tree to No.1 on their list. Similarly with the Palliative Care Team and District Nurses and I think the GP prescription list.
One thing I meant to mention to you was a form called Respect, which I'd never heard of, but was asked by both the hospital and Palliative Care people. Basically a two sided page setting out questions how you want to be treated whilst under the care of any particular health organisation. I went through it with the Care team but it could be with a GP or hospital doctor.
Its totally private, no copies made and yours to keep it at home. I completed it with a Care doctor and my wife.
Google 'Respect' and a full explanation is given, I didn't find it too gruesome. All the best to you
This difference in how these area trusts operate is disgusting, no idea how the system works or who they report to apart from the Ministry of Health if that's they are still called.

[N4LLY]

X 3 Workhorse:

Today my son comes to collect the X3. His other half was hit head on by a "Drugged up" driver
No serious injuries.
The insurance have paid out and today want the loan car back. They have not found a good replacement yet so
using the X3 for now. The bargain workhorse paying for it's self again Have added to my insurance for a month
cost £ 112.-- which i think is a bit rich, she is 24 with a clean licence for 6 years Any ways the workhorse is being useed

Z 4:

Had a good run out yesterday

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[1536Z4]

That`s some hit . Glad that she is "ok ". It can take a while to get over something like that .

[Nanu]

Lucky to get out of that one unscathed.